EU-ROP Newsletter - 7th edition - October 2023

And just like that - we are getting closer to the end of 2023.

We hope that you are doing well and had a great summer! As a lot has happened in the past few months, we want to give you a short update about the newest developments in the EU-ROP project:

400th patient

The EU-ROP registry is growing day by day and a few weeks ago, in September 2023, the 400th patient was entered into the EU-ROP database.

The 400th patient was entered by Dr Ognyan Mladenov from the Alexandrovska University in Sofia, Bulgaria, who had also entered the 200th patient last year.

Congratulations and a massive Thank you to each and every one who is contributing to this project!

Currently there are 43 centers from 11 countries actively contributing data to the registry. In the next months additional centers will hopefully obtain a positive Ethic’s vote and thus will be able to start entering patients. 

We are very grateful how the EU-ROP registry is evolving and are looking forward to the next developments!

Countries with at least 25 entered patients

25 patients entered into the EU-ROP database is a big milestone and an important parameter for the development of the project in each country. A few weeks ago, only Germany and Turkey had reached this milestone. After the tremendous efforts of several centers in Bulgaria and Poland, these two countries now also have entered more than 25 patients each into the database.

Congratulations to this great achievement and thank you for the hard work and contribution to the project to all involved centers! 

Published EU-ROP papers

We are happy to announce another big milestone: the first paper with data from the EU-ROP registry has been published and also a “methodological” paper on the parameters that are collected in our database. 

The article “Comparability of input parameters in the German ROP registry and the EU-ROP registry – An exemplary comparison between 2011 and 2021” was published in Acta Ophthalmologica and compares the parameters from the German ROP registry with those from the EU-ROP registry and investigates the possibility of joint analyses of different registry data. This is done using exemplary datasets from both databases. To sum up the results, joint analyses of different registries are possible when certain adjustments are made. If you want to read the full paper, you can download the paper here

The second paper “Development of a joint set of database parameters for the EU-ROP and “Fight Childhood Blindness!” ROP registries” was published in the British Journal of Ophthalmology. It provides a standardized set of parameters to guide data collection in future ROP trials and registries that might develop in other parts of the world as well as routine clinical practice. If you want to read the full paper, you can download the paper here.

Past conferences

At the beginning of September, Johanna Pfeil presented a current interim analysis of data from the EU-ROP registry at the “Pediatric Ophthalmology and Strabismus Forum” in Warsaw, Poland. In her presentation, she showed baseline characteristics and current treatment modalities as well as associated retreatment rates of all data entered into the database so far with a focus on the four most active contributing countries: Germany, Turkey, Poland and Bulgaria.

The same data was presented at the conference of the German Ophthalmological Society (DOG) in Berlin just a few days ago in the course of a whole symposium dedicated to ROP. 

A big “Thank you” to everyone involved in this project! Without you, this project would not be possible.

Best wishes,

Johanna Pfeil & Andreas Stahl & Sophie Schnorr

European registry on retinopathy of prematurity


Prof. Dr. med. Andreas Stahl, FEBO
University Medical Center Greifswald
Department of Ophthalmology

Dr. Johanna Pfeil
University Medical Center Greifswald
Department of Ophthalmology

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