EU-ROP Newsletter - 12th edition - June 2025

800th patient

As the first half of 2025 has almost passed, the EU-ROP project has grown further. With the joint work of the EU-ROP team from all across Europe, we were able to raise the number of entered patients in the registry to 800 patients in May 2025.

A big Thank you to everyone contributing to this project!

Congratulations to Margarita Papadopoulou from the P&A Kyriakou Athens Children Hospital in Athens, Greece for entering the 800th patient!

Our study coordinator is back

A warm Welcome to Dr. Johanna Pfeil, the study coordinator of the EU-ROP project! As most of you probably know, Johanna Pfeil took a little break due to her maternity leave. Since March 2025 she is back at work and you will probably hear more from her again in the near future. Please note she is now working part-time, so here are her working hours, during which you can reach her easily Monday to Thursday from 8:15am to 1:15pm. 

Stevie Wonder's Birthday

We wish a happy belated birthday to Stevie Wonder!

On the 13th of May, Stevie Wonder celebrated his 75th birthday. You might wonder, why we included this in our EU-ROP newsletter? Stevie Wonder was born 6 weeks early in 1950 and developed an ROP. Following, the famous singer-songwriter lost his eyesight to ROP.

He has used his platform to raise awareness and champion the rights of people with disabilities.

EU-ROP working meeting: analysis of data from Germany and Turkey

On the 22nd of May 2025, we held a working meeting with Turkish and German centers for discussing our evaluation comparing German and Turkish data from the EU-ROP database. 

A big Thank you to everyone who was able to make it and who gave valuable input to the analysis!

A few things from our meeting:

In our evaluation we noticed that we had to exclude patients due to missing data. 

This is a reminder to all active centers to please check your entered patients regularly for open queries and to fill in as much information as possible to make an evaluation possible. Thank you!

In the next couple of weeks, we will work on the analyses and on the various aspects raised during our working meeting.

We hope to be able to publish our findings soon so you can read all about the details of our evaluation!

We would like to thank you all for your interest in the project and your ongoing support!

 

Best wishes,

Andreas Stahl, Johanna Pfeil & Sophie Schnorr

European registry on retinopathy of prematurity

Contact

Prof. Dr. med. Andreas Stahl, FEBO
University Medical Center Greifswald
Department of Ophthalmology

Dr. Johanna Pfeil
University Medical Center Greifswald
Department of Ophthalmology

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