The EU-ROP registry is growing day by day and a few weeks ago, in September 2023, the 400^th patient was entered into the EU-ROP database.

The 400^th patient was entered by Dr Ognyan Mladenov from the Alexandrovska University in Sofia, Bulgaria, who had also entered the 200^th patient last year.

Congratulations and a massive Thank you to each and every one who is contributing to this project!

Currently there are 43 centers from 11 countries actively contributing data to the registry. In the next months additional centers will hopefully obtain a positive Ethic’s vote and thus will be able to start entering patients. 

We are very grateful how the EU-ROP registry is evolving and are looking forward to the next developments!

We are happy to announce another big milestone: the first paper with data from the EU-ROP registry has been published and also a “methodological” paper on the parameters that are collected in our database. 

The article “Comparability of input parameters in the German Retina.net ROP registry and the EU-ROP registry – An exemplary comparison between 2011 and 2021” was published in Acta Ophthalmologica and compares the parameters from the German Retina.net ROP registry with those from the EU-ROP registry and investigates the possibility of joint analyses of different registry data. This is done using exemplary datasets from both databases. To sum up the results, joint analyses of different registries are possible when certain adjustments are made. If you want to read the full paper, you can download the paper here. 

The second paper “Development of a joint set of database parameters for the EU-ROP and “Fight Childhood Blindness!” ROP registries” was published in the British Journal of Ophthalmology. It provides a standardized set of parameters to guide data collection in future ROP trials and registries that might develop in other parts of the world as well as routine clinical practice. If you want to read the full paper, you can download the paper here.

At the beginning of September, Johanna Pfeil presented a current interim analysis of data from the EU-ROP registry at the “Pediatric Ophthalmology and Strabismus Forum” in Warsaw, Poland. In her presentation, she showed baseline characteristics and current treatment modalities as well as associated retreatment rates of all data entered into the database so far with a focus on the four most active contributing countries: Germany, Turkey, Poland and Bulgaria.

The same data was presented at the conference of the German Ophthalmological Society (DOG) in Berlin just a few days ago in the course of a whole symposium dedicated to ROP.